Re: [Air-L] trolls and Aspergian "sufferers"
I can offer some suggestions of people doing work that intersects disability studies and internet studies - Gerard Goggin, Christopher Newell, and Katie Ellis are the first names that come to mind. A lot of the work done in this area addresses the issues of accessibility and so forth, but also extends to issues of inclusion and participation for people with disabilities. In any case, there should be loads more research on trolling being published soon, with the upcoming issue of Fibreculture: http://fibreculturejournal.org/cfp-special-issue-for-the-fibreculture-journa... Frances.
There are a lot of researchers in the area of disability studies doing interesting work - I'm not really very aware of anyone doing work that crosses disability studies with internet research, but I am going to go ask a friend now if they do know of some - it seems to me that there's a nexus of interest there that someone should be exploring. You're right to point it out, and I want to acknowledge that I see the value in having you point to it, even tho I don't really agree with how you went about it.
best,
--elijah
Also some interesting reading on disability, language, and argument. http://cripwheels.blogspot.com.au/2008/04/on-making-argument-disability-and.... On Tue, Aug 7, 2012 at 9:30 AM, Frances Shaw <franceshaw@gmail.com> wrote:
I can offer some suggestions of people doing work that intersects disability studies and internet studies - Gerard Goggin, Christopher Newell, and Katie Ellis are the first names that come to mind. A lot of the work done in this area addresses the issues of accessibility and so forth, but also extends to issues of inclusion and participation for people with disabilities.
In any case, there should be loads more research on trolling being published soon, with the upcoming issue of Fibreculture: http://fibreculturejournal.org/cfp-special-issue-for-the-fibreculture-journa...
Frances.
Hi everyone, I began the initial thread of this ongoing and surprisingly long-lived conversation. As a new member to the Association, I felt compelled to challenge statements that I found offensive, inappropriate, disrespectful, and unprofessional on the listserv. Even academic freedom has certain boundaries and constraints. It had a chilling effect on me. Rather than simply disengage and abandon the group, which seems largely self-moderated, I took a significant risk. I have not continued to weigh in since my original post, but I have carefully observed the group's dynamics, including how far and wide the discussion has traversed, individuals' highly personal and impressive disclosures in relation to their work, and passionate struggles surrounding ethical relativism and interdisciplinary pluralism. I have received many personal emails of encouragement, gratitude, organizational apology, and even outrage. The messages included far more than compassionate outreach, empathy and care-taking, however. Interestingly, I did not receive any emails of disagreement, healthy (or unhealthy) criticism, debate, and so on. This signifies something to me, which I have yet to sort out. My original post was meant to convey: "You've got to be kidding me. Suffferers? Wow. Really?" Forgoing traditional scientific use of third-person claim-staking, for me, it boils down to: * the notion that science can and should be held accountable for the ways in which it influences society (conceding an artificial distinction between the two as mutually exclusive). I was taken aback by some of the absolutist and elitist entrenchment, and most especially the cautionary tale of "Tread lightly in your disagreement with me, young Jedi. What you express could render you jobless." * certain forms of 'disability' or others forms of 'difference" as constituting cultures deserving of the kind of respect described by this organization's own Internet ethics document (even if it is ten years old) * and an awareness of how the research subjects of which we speak are also researchers themselves, as evidenced by a few members' thinly veiled descriptions of each other as trolls within a context of conducting research on trolls. I'm aware the focus of the listserv is not about organizational recruitment and retention. However, the abundance of self-irony alone is enough to keep me coming back. Michael Scarce
Hi list, I think this has been very interesting and productive in allowing us to see ourselves as a body of people passionately interested in the internet and the whole array of ethical issues that change with it. Thank you, everyone! To me, the most interesting part is the statement that the lack of non-verbal clues in internet communication necessarily diminishes the empathy felt by participants. Logically, I think it corresponds closely to the statement that standing behind a closed door and shouting would result in a lack of empathy in communication. Why? Would it not, on the contrary, serve to activate our empathy? Communication is always based on inference - we always lack some clues, be they verbal or non-verbal. Empathy helps us fill out the blanks. In my view, internet communication is not clue-less in any sense of the word. I'm not alone here. This point has been made many times by members of this association. Why do we keep repeating the same process of discovering the empathy inherent in our conversations with each other? Just my .05 euro. Sent from Anaïs, my iPhone On 07/08/2012, at 21.58, Michael Scarce <scarce@mac.com> wrote:
Hi everyone,
I began the initial thread of this ongoing and surprisingly long-lived conversation. As a new member to the Association, I felt compelled to challenge statements that I found offensive, inappropriate, disrespectful, and unprofessional on the listserv. Even academic freedom has certain boundaries and constraints. It had a chilling effect on me. Rather than simply disengage and abandon the group, which seems largely self-moderated, I took a significant risk.
I have not continued to weigh in since my original post, but I have carefully observed the group's dynamics, including how far and wide the discussion has traversed, individuals' highly personal and impressive disclosures in relation to their work, and passionate struggles surrounding ethical relativism and interdisciplinary pluralism.
I have received many personal emails of encouragement, gratitude, organizational apology, and even outrage. The messages included far more than compassionate outreach, empathy and care-taking, however. Interestingly, I did not receive any emails of disagreement, healthy (or unhealthy) criticism, debate, and so on. This signifies something to me, which I have yet to sort out.
My original post was meant to convey: "You've got to be kidding me. Suffferers? Wow. Really?" Forgoing traditional scientific use of third-person claim-staking, for me, it boils down to:
* the notion that science can and should be held accountable for the ways in which it influences society (conceding an artificial distinction between the two as mutually exclusive). I was taken aback by some of the absolutist and elitist entrenchment, and most especially the cautionary tale of "Tread lightly in your disagreement with me, young Jedi. What you express could render you jobless."
* certain forms of 'disability' or others forms of 'difference" as constituting cultures deserving of the kind of respect described by this organization's own Internet ethics document (even if it is ten years old)
* and an awareness of how the research subjects of which we speak are also researchers themselves, as evidenced by a few members' thinly veiled descriptions of each other as trolls within a context of conducting research on trolls.
I'm aware the focus of the listserv is not about organizational recruitment and retention. However, the abundance of self-irony alone is enough to keep me coming back.
Michael Scarce
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I would just like to remind people of the principle of charity, which holds that before we evaluate a position, concept, theory, or argument, we first try to understand its most convincing, persuasive, or strongest form. http://en.wikipedia.org/wiki/Principle_of_charity
I am going to second this post after what went down on this list within the last few weeks. I, for one, don't feel like posting anything here anymore for fear of being ruthlessly judged and cornered into a defensive position rather than being engaged in a constructive argument. There are a lot of other things I can say on this, but I won't. That would be my two cents... On Wed, Aug 8, 2012 at 7:44 AM, jeremy hunsinger <jhuns@vt.edu> wrote:
I would just like to remind people of the principle of charity, which holds that before we evaluate a position, concept, theory, or argument, we first try to understand its most convincing, persuasive, or strongest form.
http://en.wikipedia.org/wiki/Principle_of_charity
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-- Thanks, Burcu S. Bakioglu, Ph.D. Postdoctoral Fellow in New Media Lawrence University http://www.palefirer.com http://palefirer.com/blog/ -- "Come to the dark side, we have cookies." ~Anonymous
Hi, I have been seeking research of technology use among people with intellectual disabilities (ID). Especially those research which concern where, how much and for which purpose people with ID use computers and Interent. I have found a couple of research (Parette & VanBiervliet 1992; Wehmeyer's 1998 &1999; Carey, Friedman, Bryen 2005). I would appreciate if someone could tell me if there are another relevant research. Thanks, Eija Luhtasela _______________________________________________ The Air-L@listserv.aoir.org mailing list is provided by the Association of Internet Researchers http://aoir.org Subscribe, change options or unsubscribe at: http://listserv.aoir.org/listinfo.cgi/air-l-aoir.org Join the Association of Internet Researchers: http://www.aoir.org/
Hi Eija, Here are a few references for you. Note that the Palmer et al. is a 2012 update to the Wehmeyer article you referred to. Löfgren-Mårtensson L. (2008). Love in cyberspace: Swedish young people with intellectual disabilities and the internet. Scandinavian Journal of Disability Research 10, 125–38. McClimens A, & Gordon f. (2009). People with intellectual disabilities as bloggers: what's social capital got to do with it anyway? Journal of Intellectual Disabilities March, vol. 13 no. 1 19-30. doi: 10.1177/174462950910448 Palmer, S. B., Wehmeyer, M. L., Davies, D. K. and Stock, S. E. (2012), Family members' reports of the technology use of family members with intellectual and developmental disabilities. Journal of Intellectual Disability Research, 56: 402–414. doi: 10.1111/j.1365-2788.2011.01489.x Parsons, S., Daniels, H., Porter, J. and Robertson, C. (2006), The use of ICT by adults with learning disabilities in day and residential services. British Journal of Educational Technology, 37: 31–44. doi: 10.1111/j.1467-8535.2005.00516.x Renblad, K. (2003). How do people with intellectual disabilities think about empowerment and information and communication technology? International Journal of Rehabilitation Research, 26, 175–182. Some difficulties in finding the type of research you're looking for include problems of definition (do we include individuals along the full spectrum of learning disabilities in our "demographic of interest"?); the tendency of some researchers to lump all types of disability together under one deficit-oriented roof (which means that if your interest is primarily about demographic numbers, you may want to cast a wider net with your search terms); the difficulty of using research methods such as surveys and self-reporting to understand the technology use of individuals with intellectual disabilities, etc. I don't know if you're also interested in "interventionist" style studies, in which researchers work with participants to develop new technology skills. My impression is that this is not your focus, however, I've included at least one here just fyi. Best, Naomi Bloch ________________________________________ From: air-l-bounces@listserv.aoir.org [air-l-bounces@listserv.aoir.org] on behalf of Eija Luhtasela [eilehiko@gmail.com] Sent: Thursday, August 09, 2012 5:42 AM To: air-l@listserv.aoir.org Subject: [Air-L] research of technology use among people with intellectual disabilities Hi, I have been seeking research of technology use among people with intellectual disabilities (ID). Especially those research which concern where, how much and for which purpose people with ID use computers and Interent. I have found a couple of research (Parette & VanBiervliet 1992; Wehmeyer's 1998 &1999; Carey, Friedman, Bryen 2005). I would appreciate if someone could tell me if there are another relevant research. Thanks, Eija Luhtasela _______________________________________________ The Air-L@listserv.aoir.org mailing list is provided by the Association of Internet Researchers http://aoir.org Subscribe, change options or unsubscribe at: http://listserv.aoir.org/listinfo.cgi/air-l-aoir.org Join the Association of Internet Researchers: http://www.aoir.org/ _______________________________________________ The Air-L@listserv.aoir.org mailing list is provided by the Association of Internet Researchers http://aoir.org Subscribe, change options or unsubscribe at: http://listserv.aoir.org/listinfo.cgi/air-l-aoir.org Join the Association of Internet Researchers: http://www.aoir.org/
Hi Naomi, I would like to thank you for your references. They are very interesting research. Especially Palmer et al. 2012 and Parsons et al. 2006 were those what I was seeking for. Interventionist style studies are new for me, I am going to seek more information of them. Greetings, Eija Luhtasela
Hi Eija,
Here are a few references for you. Note that the Palmer et al. is a 2012 update to the Wehmeyer article you referred to.
Löfgren-Mårtensson L. (2008). Love in cyberspace: Swedish young people with intellectual disabilities and the internet. /Scandinavian Journal of Disability Research/ 10, 125–38.
McClimens A, & Gordon f. (2009). People with intellectual disabilities as bloggers: what's social capital got to do with it anyway? /Journal of Intellectual Disabilities/ March, vol. 13 no. 1 19-30. doi: 10.1177/174462950910448
Palmer, S. B., Wehmeyer, M. L., Davies, D. K. and Stock, S. E. (2012), Family members' reports of the technology use of family members with intellectual and developmental disabilities. /Journal of Intellectual Disability Research/, 56: 402–414. doi: 10.1111/j.1365-2788.2011.01489.x
Parsons, S., Daniels, H., Porter, J. and Robertson, C. (2006), The use of ICT by adults with learning disabilities in day and residential services. British Journal of Educational Technology, 37: 31–44. doi: 10.1111/j.1467-8535.2005.00516.x
Renblad, K. (2003). How do people with intellectual disabilities think about empowerment and information and communication technology? International Journal of Rehabilitation Research, 26, 175–182.
Some difficulties in finding the type of research you're looking for include problems of definition (do we include individuals along the full spectrum of learning disabilities in our "demographic of interest"?); the tendency of some researchers to lump all types of disability together under one deficit-oriented roof (which means that if your interest is primarily about demographic numbers, you may want to cast a wider net with your search terms); the difficulty of using research methods such as surveys and self-reporting to understand the technology use of individuals with intellectual disabilities, etc.
I don't know if you're also interested in "interventionist" style studies, in which researchers work with participants to develop new technology skills. My impression is that this is not your focus, however, I've included at least one here just fyi.
Best, Naomi Bloch
________________________________________ From: air-l-bounces@listserv.aoir.org [air-l-bounces@listserv.aoir.org] on behalf of Eija Luhtasela [eilehiko@gmail.com] Sent: Thursday, August 09, 2012 5:42 AM To: air-l@listserv.aoir.org Subject: [Air-L] research of technology use among people with intellectual disabilities
Hi,
I have been seeking research of technology use among people with intellectual disabilities (ID). Especially those research which concern where, how much and for which purpose people with ID use computers and Interent. I have found a couple of research (Parette & VanBiervliet 1992; Wehmeyer's 1998 &1999; Carey, Friedman, Bryen 2005). I would appreciate if someone could tell me if there are another relevant research.
Thanks, Eija Luhtasela
_______________________________________________ The Air-L@listserv.aoir.org mailing list is provided by the Association of Internet Researchers http://aoir.org Subscribe, change options or unsubscribe at: http://listserv.aoir.org/listinfo.cgi/air-l-aoir.org
Join the Association of Internet Researchers: http://www.aoir.org/
Some more references: Brown, D.J., H.M. Powell, S. Battersby and J. Lewis. 2002. Design guidelines for interactive multimedia learning environments to promote social inclusion. Disability and Rehabilitation 24(11-12):587-597. Bunning, K., Heath, B. and Minnion, A. (2009) Communication and empowerment: a place for rich and multiple media? Journal of Applied Research in Intellectual Disabilities 22:370-379. Friedman, G. and D. Bryen. 2007. Web accessibility design recommendations for people with cognitive disabilities. Technology and Disability, 19(4):205-12. Harrysson, B., A. Svensk, and G.I. Johansson. 2004. 'How people with developmental disabilities navigate the Internet'. British Journal of Special Education 31(3):138-142. Karreman, J., T. van der Geest and E. Buursink, E. 2007. Accessible Website Content Guidelines for Users with Intellectual Disabilities. Journal of Applied Research in Intellectual Disabilities 20(6):510-18. Kennedy H; Thomas S; Evans S (2010) "Can the web be accessible for people with intellectual disabilities?", Universal Access in the Information Society: international journal. 27.1: 29-39. Small, J., P. Schallau, K. Brown, and R. Appleyard. 2005. Web Accessibility for People with Cognitive Disabilities. In Conference on Human Factors in Computing Systems : CHI 2005. NY, 2005. ACM -----Original Message----- From: air-l-bounces@listserv.aoir.org [mailto:air-l-bounces@listserv.aoir.org] On Behalf Of Eija Luhtasela Sent: 22 August 2012 12:15 To: air-l@listserv.aoir.org Subject: Re: [Air-L] research of technology use among people with intellectual disabilities Hi Naomi, I would like to thank you for your references. They are very interesting research. Especially Palmer et al. 2012 and Parsons et al. 2006 were those what I was seeking for. Interventionist style studies are new for me, I am going to seek more information of them. Greetings, Eija Luhtasela
Hi Eija,
Here are a few references for you. Note that the Palmer et al. is a 2012 update to the Wehmeyer article you referred to.
Löfgren-Mårtensson L. (2008). Love in cyberspace: Swedish young people with intellectual disabilities and the internet. /Scandinavian Journal of Disability Research/ 10, 125-38.
McClimens A, & Gordon f. (2009). People with intellectual disabilities as bloggers: what's social capital got to do with it anyway? /Journal of Intellectual Disabilities/ March, vol. 13 no. 1 19-30. doi: 10.1177/174462950910448
Palmer, S. B., Wehmeyer, M. L., Davies, D. K. and Stock, S. E. (2012), Family members' reports of the technology use of family members with intellectual and developmental disabilities. /Journal of Intellectual Disability Research/, 56: 402-414. doi: 10.1111/j.1365-2788.2011.01489.x
Parsons, S., Daniels, H., Porter, J. and Robertson, C. (2006), The use of ICT by adults with learning disabilities in day and residential services. British Journal of Educational Technology, 37: 31-44. doi: 10.1111/j.1467-8535.2005.00516.x
Renblad, K. (2003). How do people with intellectual disabilities think about empowerment and information and communication technology? International Journal of Rehabilitation Research, 26, 175-182.
Some difficulties in finding the type of research you're looking for include problems of definition (do we include individuals along the full spectrum of learning disabilities in our "demographic of interest"?); the tendency of some researchers to lump all types of disability together under one deficit-oriented roof (which means that if your interest is primarily about demographic numbers, you may want to cast a wider net with your search terms); the difficulty of using research methods such as surveys and self-reporting to understand the technology use of individuals with intellectual disabilities, etc.
I don't know if you're also interested in "interventionist" style studies, in which researchers work with participants to develop new technology skills. My impression is that this is not your focus, however, I've included at least one here just fyi.
Best, Naomi Bloch
________________________________________ From: air-l-bounces@listserv.aoir.org [air-l-bounces@listserv.aoir.org] on behalf of Eija Luhtasela [eilehiko@gmail.com] Sent: Thursday, August 09, 2012 5:42 AM To: air-l@listserv.aoir.org Subject: [Air-L] research of technology use among people with intellectual disabilities
Hi,
I have been seeking research of technology use among people with intellectual disabilities (ID). Especially those research which concern where, how much and for which purpose people with ID use computers and Interent. I have found a couple of research (Parette & VanBiervliet 1992; Wehmeyer's 1998 &1999; Carey, Friedman, Bryen 2005). I would appreciate if someone could tell me if there are another relevant research.
Thanks, Eija Luhtasela
_______________________________________________ The Air-L@listserv.aoir.org mailing list is provided by the Association of Internet Researchers http://aoir.org Subscribe, change options or unsubscribe at: http://listserv.aoir.org/listinfo.cgi/air-l-aoir.org
Join the Association of Internet Researchers: http://www.aoir.org/
_______________________________________________ The Air-L@listserv.aoir.org mailing list is provided by the Association of Internet Researchers http://aoir.org Subscribe, change options or unsubscribe at: http://listserv.aoir.org/listinfo.cgi/air-l-aoir.org Join the Association of Internet Researchers: http://www.aoir.org/
participants (8)
-
Bloch, Naomi -
Burcu Bakioglu -
Charlie Breindahl -
Eija Luhtasela -
Frances Shaw -
Helen Kennedy -
jeremy hunsinger -
Michael Scarce