Hi Maria, Meryl, Annette, Yukari and other members, I am looking to connect with others who have an interest in the area of social media and ethics. In a past life I was a very successful study manager who could recruit and locate the most difficult to find participants (e.g. prisoners, injecting drug users, parents with open CPS cases, etc.) and trained my staff to create work accounts on social media for participant recruitment and retention. I then went on to be an IRB reviewer and was puzzled by the aversion many IRBs held against social media research despite the lack of federal regulations or guidance pertaining to this issue. I'm now graduating with dual masters and conducted a qualitative study with IRB professionals across the country on this topic for my thesis. Below is a YouTube link to a Town Hall talk I gave where I shared preliminary findings. https://www.youtube.com/watch?v=7XywfWZCkr0 I've also joined a new collaboration at the UC San Diego called CORE (Connected and Open Research Ethics). The CORE <http://thecore.ucsd.edu/network/> initiative is funded by the Robert Wood Johnson Foundation to bridge a gap between researchers using new technologies and IRBs. The goal is to create a community of stakeholders who can inform best practices that can help make the process of ethical review for research involving emerging technology relevant and timely. We are asking a few of our key CORE Network members to help with populating the CORE Resource Library. We specifically need examples of language in research protocols and consent forms that the IRB found acceptable with respect to the use of social media. If you have any examples of that language, or any other helpful resources, the attached directions will walk you through how to share them with the CORE Network. *If you have resources you’d like to share with me but don’t have time to upload them yourself, please let me know. I can also upload them and list you as the source*. Here are a few news stories to explain more about CORE and a demo: https://www.youtube.com/watch?v=upy5UrKACw4 http://www.bna.com/new-tool-help-n57982064115/ https://health.ucsd.edu/news/releases/Pages/2016-03-18-BRIC-program-for-educ... I am also happy to connect you with the CORE team members who can best answer questions you may have. I have a Google Drive folder full of articles I can share with you as well if you'd like and attached a doc with lots of links you may find helpful. *Tiffany Woelfel, MSW, MPHc* @tiffpage CORE <http://thecore.ucsd.edu/> Member *NASW-WA* South Puget Sound Regional Chair www.nasw-wa.org Follow us on Facebook <https://www.facebook.com/NASW-WA-Chapter-294969359118/> On Thu, May 19, 2016 at 10:50 AM, María González Aguado < mariagaguado@gmail.com> wrote:
Dear members,
I'm writing you asking for ethical advice to conduct ethnography on Instagram. I'll really appreciate if you could let me know if there are any ethical guidelines or publications on how to conduct online research with people undergoing severe mental conditions, and if there is anything specific for Instagram. The only ones I know are the guidelines of the British Psychological Association. In the same way, if any of you are working online on sensitive topics, any advice is welcomed.
Thanks a lot in advance. Best wishes, María
-- María González Aguado Research Fellow- Department of Sociology University of Leicester University Road Leicester LE1 7RH, UK _______________________________________________ The Air-L@listserv.aoir.org mailing list is provided by the Association of Internet Researchers http://aoir.org Subscribe, change options or unsubscribe at: http://listserv.aoir.org/listinfo.cgi/air-l-aoir.org
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