Literature on Facebook groups on DTC genetic tests
Hi everyone, I am studying the case of the sharing of of DTC genetic tests' results (from 23andme, Ancestry.com etc.)online, in particular on dedicated Facebook groups (such as "Ancestry DNA matching <https://www.facebook.com/groups/407494112747727/> or others). Do you have any recommendations of relevant literature, theoretical and empirical research on these Facebook groups or, more broadly on the topic of sharing genetic tests' results on social media? Your suggestions will be much appreciated ! Best regards, Serena -- Serena Ciranna PhD student, Institut Jean-Nicod, EHESS, Paris Visiting researcher at EPIDAPO, Institute for Society and Genetics, UCLA
Hopefully you know Joan Donovan's work? https://osf.io/preprints/socarxiv/7f9bc/ https://scholarspace.manoa.hawaii.edu/bitstream/10125/50105/1/paper0218.pdf On 3/18/19, 4:26 AM, "Air-L on behalf of Serena Ciranna" <air-l-bounces@listserv.aoir.org on behalf of serenaciranna@gmail.com> wrote: Hi everyone, I am studying the case of the sharing of of DTC genetic tests' results (from 23andme, Ancestry.com etc.)online, in particular on dedicated Facebook groups (such as "Ancestry DNA matching <https://www.facebook.com/groups/407494112747727/> or others). Do you have any recommendations of relevant literature, theoretical and empirical research on these Facebook groups or, more broadly on the topic of sharing genetic tests' results on social media? Your suggestions will be much appreciated ! Best regards, Serena -- Serena Ciranna PhD student, Institut Jean-Nicod, EHESS, Paris Visiting researcher at EPIDAPO, Institute for Society and Genetics, UCLA _______________________________________________ The Air-L@listserv.aoir.org mailing list is provided by the Association of Internet Researchers http://aoir.org Subscribe, change options or unsubscribe at: http://listserv.aoir.org/listinfo.cgi/air-l-aoir.org Join the Association of Internet Researchers: http://www.aoir.org/
Thank very much for your answer. Yes, I know their work and had the chance to meet the authors of the two studies you mentioned at the Institute for Society and Genetics at UCLA. Besides those very interesting works, I have found very little research focused on these Facebook groups. More specifically, I am looking for: - more studies on online identity construction through the sharing of genetic tests' results - existing data about the extent of the phenomenon of sharing and discussing the results of genetic tests online (how many groups/users, etc.). For instance what is the ratio of the number of individuals who have taken the test and those who then shared it on social media? Thank you! Best regards, Serena On Mon, Mar 18, 2019 at 4:07 PM Tarleton L. Gillespie <tlg28@cornell.edu> wrote:
Hopefully you know Joan Donovan's work? https://osf.io/preprints/socarxiv/7f9bc/ https://scholarspace.manoa.hawaii.edu/bitstream/10125/50105/1/paper0218.pdf
On 3/18/19, 4:26 AM, "Air-L on behalf of Serena Ciranna" < air-l-bounces@listserv.aoir.org on behalf of serenaciranna@gmail.com> wrote:
Hi everyone,
I am studying the case of the sharing of of DTC genetic tests' results (from 23andme, Ancestry.com etc.)online, in particular on dedicated Facebook groups (such as "Ancestry DNA matching <https://www.facebook.com/groups/407494112747727/> or others).
Do you have any recommendations of relevant literature, theoretical and empirical research on these Facebook groups or, more broadly on the topic of sharing genetic tests' results on social media?
Your suggestions will be much appreciated !
Best regards, Serena
--
Serena Ciranna
PhD student, Institut Jean-Nicod, EHESS, Paris
Visiting researcher at EPIDAPO, Institute for Society and Genetics, UCLA _______________________________________________ The Air-L@listserv.aoir.org mailing list is provided by the Association of Internet Researchers http://aoir.org Subscribe, change options or unsubscribe at: http://listserv.aoir.org/listinfo.cgi/air-l-aoir.org
Join the Association of Internet Researchers: http://www.aoir.org/
-- Serena Ciranna PhD student, Institut Jean-Nicod, EHESS, Paris Visiting researcher at EPIDAPO, Institute for Society and Genetics, UCLA
Hi Serena, I can't help you on the question of academic literature on the sharing of genetic testing results on social media, but I am very familiar with this genre of content on YouTube and would be happy to point you in the direction of some videos if that would be of interest to you? In particular, I know that BuzzFeed have produced a lot of these sorts of videos and have had great success with them, for example: - 'The Try Guys Take An Ancestry DNA Test' (15.6 million views) https://www.youtube.com/watch?v=N06g2kc1Dxo - 'We Took A DNA Test • The Test Friends' (12.6 million views) https://www.youtube.com/watch?v=BiNNUeMNcVw - 'Ethnically Ambiguous People Take A DNA Test' (3.7 million views - and what a title!) https://www.youtube.com/watch?v=5171eGo13hs This genre of video has become a prevalent trend on the platform in the last 2 years or so, with many people still replicating the format. As these videos are so popular on the platform (much bigger than the 77,000 members of the facebook group you highlighted), I would think they might be an important piece in the puzzle of a study about ancestry and social media? Please feel free to get in touch! Best, Zoe ________________________ Zoë Glatt www.zoeglatt.com<http://www.zoeglatt.com/> ESRC PhD Researcher in Media & Communications London School of Economics and Political Science (LSE) Managing Editor: Communication, Culture & Critique YouTube channel<https://www.youtube.com/user/Zedstergal> | Twitter<https://twitter.com/ZoeGlatt> | LSE bio<http://www.lse.ac.uk/media-and-communications/people/phd-researchers/zoe-glatt> <http://www.lse.ac.uk/media-and-communications/people/phd-researchers/zoe-glatt> ________________________________ From: Air-L <air-l-bounces@listserv.aoir.org> on behalf of Serena Ciranna <serenaciranna@gmail.com> Sent: 18 March 2019 15:30:18 To: Tarleton L. Gillespie Cc: List Aoir Subject: Re: [Air-L] Literature on Facebook groups on DTC genetic tests Thank very much for your answer. Yes, I know their work and had the chance to meet the authors of the two studies you mentioned at the Institute for Society and Genetics at UCLA. Besides those very interesting works, I have found very little research focused on these Facebook groups. More specifically, I am looking for: - more studies on online identity construction through the sharing of genetic tests' results - existing data about the extent of the phenomenon of sharing and discussing the results of genetic tests online (how many groups/users, etc.). For instance what is the ratio of the number of individuals who have taken the test and those who then shared it on social media? Thank you! Best regards, Serena On Mon, Mar 18, 2019 at 4:07 PM Tarleton L. Gillespie <tlg28@cornell.edu> wrote:
Hopefully you know Joan Donovan's work? https://osf.io/preprints/socarxiv/7f9bc/ https://scholarspace.manoa.hawaii.edu/bitstream/10125/50105/1/paper0218.pdf
On 3/18/19, 4:26 AM, "Air-L on behalf of Serena Ciranna" < air-l-bounces@listserv.aoir.org on behalf of serenaciranna@gmail.com> wrote:
Hi everyone,
I am studying the case of the sharing of of DTC genetic tests' results (from 23andme, Ancestry.com etc.)online, in particular on dedicated Facebook groups (such as "Ancestry DNA matching <https://www.facebook.com/groups/407494112747727/> or others).
Do you have any recommendations of relevant literature, theoretical and empirical research on these Facebook groups or, more broadly on the topic of sharing genetic tests' results on social media?
Your suggestions will be much appreciated !
Best regards, Serena
--
Serena Ciranna
PhD student, Institut Jean-Nicod, EHESS, Paris
Visiting researcher at EPIDAPO, Institute for Society and Genetics, UCLA _______________________________________________ The Air-L@listserv.aoir.org mailing list is provided by the Association of Internet Researchers http://aoir.org Subscribe, change options or unsubscribe at: http://listserv.aoir.org/listinfo.cgi/air-l-aoir.org
Join the Association of Internet Researchers: http://www.aoir.org/
-- Serena Ciranna PhD student, Institut Jean-Nicod, EHESS, Paris Visiting researcher at EPIDAPO, Institute for Society and Genetics, UCLA _______________________________________________ The Air-L@listserv.aoir.org mailing list is provided by the Association of Internet Researchers http://aoir.org Subscribe, change options or unsubscribe at: http://listserv.aoir.org/listinfo.cgi/air-l-aoir.org Join the Association of Internet Researchers: http://www.aoir.org/
Hi Zoe, Thank you very much! Even if I will mainly focus on Facebook's groups, I am more broadly interested in how narratives about genetics and personal identity are developed on social media, so YouTube is a very good example and as you said an important piece in the puzzle. I have found an interesting article on this topic: Autobiologies on YouTube: Narratives of Direct-to-Consumer Genetic Testing <https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3996527/>. Best, Serena On Mon, Mar 18, 2019 at 4:50 PM Glatt,ZA (pgr) <Z.A.Glatt@lse.ac.uk> wrote:
Hi Serena,
I can't help you on the question of academic literature on the sharing of genetic testing results on social media, but I am very familiar with this genre of content on YouTube and would be happy to point you in the direction of some videos if that would be of interest to you?
In particular, I know that BuzzFeed have produced a lot of these sorts of videos and have had great success with them, for example:
- 'The Try Guys Take An Ancestry DNA Test' (15.6 million views) https://www.youtube.com/watch?v=N06g2kc1Dxo
- 'We Took A DNA Test • The Test Friends' (12.6 million views) https://www.youtube.com/watch?v=BiNNUeMNcVw
- 'Ethnically Ambiguous People Take A DNA Test' (3.7 million views - and what a title!) https://www.youtube.com/watch?v=5171eGo13hs
This genre of video has become a prevalent trend on the platform in the last 2 years or so, with many people still replicating the format. As these videos are so popular on the platform (much bigger than the 77,000 members of the facebook group you highlighted), I would think they might be an important piece in the puzzle of a study about ancestry and social media?
Please feel free to get in touch!
Best,
Zoe
*________________________*
*Zoë Glatt*
www.zoeglatt.com
ESRC PhD Researcher in Media & Communications
London School of Economics and Political Science (LSE)
Managing Editor: Communication, Culture & Critique
YouTube channel <https://www.youtube.com/user/Zedstergal> | Twitter <https://twitter.com/ZoeGlatt> | LSE bio <http://www.lse.ac.uk/media-and-communications/people/phd-researchers/zoe-glatt>
<http://www.lse.ac.uk/media-and-communications/people/phd-researchers/zoe-glatt>
------------------------------ *From:* Air-L <air-l-bounces@listserv.aoir.org> on behalf of Serena Ciranna <serenaciranna@gmail.com> *Sent:* 18 March 2019 15:30:18 *To:* Tarleton L. Gillespie *Cc:* List Aoir *Subject:* Re: [Air-L] Literature on Facebook groups on DTC genetic tests
Thank very much for your answer. Yes, I know their work and had the chance to meet the authors of the two studies you mentioned at the Institute for Society and Genetics at UCLA. Besides those very interesting works, I have found very little research focused on these Facebook groups. More specifically, I am looking for: - more studies on online identity construction through the sharing of genetic tests' results - existing data about the extent of the phenomenon of sharing and discussing the results of genetic tests online (how many groups/users, etc.). For instance what is the ratio of the number of individuals who have taken the test and those who then shared it on social media?
Thank you! Best regards, Serena
On Mon, Mar 18, 2019 at 4:07 PM Tarleton L. Gillespie <tlg28@cornell.edu> wrote:
Hopefully you know Joan Donovan's work? https://osf.io/preprints/socarxiv/7f9bc/
https://scholarspace.manoa.hawaii.edu/bitstream/10125/50105/1/paper0218.pdf
On 3/18/19, 4:26 AM, "Air-L on behalf of Serena Ciranna" < air-l-bounces@listserv.aoir.org on behalf of serenaciranna@gmail.com> wrote:
Hi everyone,
I am studying the case of the sharing of of DTC genetic tests'
results
(from 23andme, Ancestry.com etc.)online, in particular on dedicated Facebook groups (such as "Ancestry DNA matching <https://www.facebook.com/groups/407494112747727/> or others).
Do you have any recommendations of relevant literature, theoretical
and
empirical research on these Facebook groups or, more broadly on the topic of sharing genetic tests' results on social media?
Your suggestions will be much appreciated !
Best regards, Serena
--
Serena Ciranna
PhD student, Institut Jean-Nicod, EHESS, Paris
Visiting researcher at EPIDAPO, Institute for Society and Genetics, UCLA _______________________________________________ The Air-L@listserv.aoir.org mailing list is provided by the Association of Internet Researchers
Subscribe, change options or unsubscribe at: http://listserv.aoir.org/listinfo.cgi/air-l-aoir.org
Join the Association of Internet Researchers: http://www.aoir.org/
--
Serena Ciranna
PhD student, Institut Jean-Nicod, EHESS, Paris
Visiting researcher at EPIDAPO, Institute for Society and Genetics, UCLA _______________________________________________ The Air-L@listserv.aoir.org mailing list is provided by the Association of Internet Researchers http://aoir.org Subscribe, change options or unsubscribe at: http://listserv.aoir.org/listinfo.cgi/air-l-aoir.org
Join the Association of Internet Researchers: http://www.aoir.org/
-- Serena Ciranna PhD student, Institut Jean-Nicod, EHESS, Paris Visiting researcher at EPIDAPO, Institute for Society and Genetics, UCLA
Hi Serena The following people have written about DTC genetics and digital culture: Minna Ruckenstein Sally Wyatt Sandra Lee Peter Chow White Jenny Reardon Kim Tallbear Kate O'Riordan I hope this helpful. all the best Kate ________________________________________ From: Air-L [air-l-bounces@listserv.aoir.org] on behalf of Tarleton L. Gillespie [tlg28@cornell.edu] Sent: Monday, March 18, 2019 3:07 PM To: Serena Ciranna; List Aoir Subject: Re: [Air-L] Literature on Facebook groups on DTC genetic tests Hopefully you know Joan Donovan's work? https://osf.io/preprints/socarxiv/7f9bc/ https://scholarspace.manoa.hawaii.edu/bitstream/10125/50105/1/paper0218.pdf On 3/18/19, 4:26 AM, "Air-L on behalf of Serena Ciranna" <air-l-bounces@listserv.aoir.org on behalf of serenaciranna@gmail.com> wrote: Hi everyone, I am studying the case of the sharing of of DTC genetic tests' results (from 23andme, Ancestry.com etc.)online, in particular on dedicated Facebook groups (such as "Ancestry DNA matching <https://www.facebook.com/groups/407494112747727/> or others). Do you have any recommendations of relevant literature, theoretical and empirical research on these Facebook groups or, more broadly on the topic of sharing genetic tests' results on social media? Your suggestions will be much appreciated ! Best regards, Serena -- Serena Ciranna PhD student, Institut Jean-Nicod, EHESS, Paris Visiting researcher at EPIDAPO, Institute for Society and Genetics, UCLA _______________________________________________ The Air-L@listserv.aoir.org mailing list is provided by the Association of Internet Researchers http://aoir.org Subscribe, change options or unsubscribe at: http://listserv.aoir.org/listinfo.cgi/air-l-aoir.org Join the Association of Internet Researchers: http://www.aoir.org/ _______________________________________________ The Air-L@listserv.aoir.org mailing list is provided by the Association of Internet Researchers http://aoir.org Subscribe, change options or unsubscribe at: http://listserv.aoir.org/listinfo.cgi/air-l-aoir.org Join the Association of Internet Researchers: http://www.aoir.org/
Thank you Kate, This is very helpful ! Best regards, Serena On Tue, Mar 19, 2019 at 8:55 AM Kate O'Riordan <K.ORiordan@sussex.ac.uk> wrote:
Hi Serena
The following people have written about DTC genetics and digital culture:
Minna Ruckenstein Sally Wyatt Sandra Lee Peter Chow White Jenny Reardon Kim Tallbear Kate O'Riordan
I hope this helpful. all the best Kate
________________________________________ From: Air-L [air-l-bounces@listserv.aoir.org] on behalf of Tarleton L. Gillespie [tlg28@cornell.edu] Sent: Monday, March 18, 2019 3:07 PM To: Serena Ciranna; List Aoir Subject: Re: [Air-L] Literature on Facebook groups on DTC genetic tests
Hopefully you know Joan Donovan's work? https://osf.io/preprints/socarxiv/7f9bc/ https://scholarspace.manoa.hawaii.edu/bitstream/10125/50105/1/paper0218.pdf
On 3/18/19, 4:26 AM, "Air-L on behalf of Serena Ciranna" < air-l-bounces@listserv.aoir.org on behalf of serenaciranna@gmail.com> wrote:
Hi everyone,
I am studying the case of the sharing of of DTC genetic tests' results (from 23andme, Ancestry.com etc.)online, in particular on dedicated Facebook groups (such as "Ancestry DNA matching <https://www.facebook.com/groups/407494112747727/> or others).
Do you have any recommendations of relevant literature, theoretical and empirical research on these Facebook groups or, more broadly on the topic of sharing genetic tests' results on social media?
Your suggestions will be much appreciated !
Best regards, Serena
--
Serena Ciranna
PhD student, Institut Jean-Nicod, EHESS, Paris
Visiting researcher at EPIDAPO, Institute for Society and Genetics, UCLA _______________________________________________ The Air-L@listserv.aoir.org mailing list is provided by the Association of Internet Researchers http://aoir.org Subscribe, change options or unsubscribe at: http://listserv.aoir.org/listinfo.cgi/air-l-aoir.org
Join the Association of Internet Researchers: http://www.aoir.org/
_______________________________________________ The Air-L@listserv.aoir.org mailing list is provided by the Association of Internet Researchers http://aoir.org Subscribe, change options or unsubscribe at: http://listserv.aoir.org/listinfo.cgi/air-l-aoir.org
Join the Association of Internet Researchers: http://www.aoir.org/ _______________________________________________ The Air-L@listserv.aoir.org mailing list is provided by the Association of Internet Researchers http://aoir.org Subscribe, change options or unsubscribe at: http://listserv.aoir.org/listinfo.cgi/air-l-aoir.org
Join the Association of Internet Researchers: http://www.aoir.org/
-- Serena Ciranna PhD student, Institut Jean-Nicod, EHESS, Paris Visiting researcher at EPIDAPO, Institute for Society and Genetics, UCLA
participants (4)
-
Glatt,ZA (pgr) -
Kate O'Riordan -
Serena Ciranna -
Tarleton L. Gillespie