Thank very much for your answer. Yes, I know their work and had the chance to meet the authors of the two studies you mentioned at the Institute for Society and Genetics at UCLA. Besides those very interesting works, I have found very little research focused on these Facebook groups. More specifically, I am looking for: - more studies on online identity construction through the sharing of genetic tests' results - existing data about the extent of the phenomenon of sharing and discussing the results of genetic tests online (how many groups/users, etc.). For instance what is the ratio of the number of individuals who have taken the test and those who then shared it on social media? Thank you! Best regards, Serena On Mon, Mar 18, 2019 at 4:07 PM Tarleton L. Gillespie <tlg28@cornell.edu> wrote:
Hopefully you know Joan Donovan's work? https://osf.io/preprints/socarxiv/7f9bc/ https://scholarspace.manoa.hawaii.edu/bitstream/10125/50105/1/paper0218.pdf
On 3/18/19, 4:26 AM, "Air-L on behalf of Serena Ciranna" < air-l-bounces@listserv.aoir.org on behalf of serenaciranna@gmail.com> wrote:
Hi everyone,
I am studying the case of the sharing of of DTC genetic tests' results (from 23andme, Ancestry.com etc.)online, in particular on dedicated Facebook groups (such as "Ancestry DNA matching <https://www.facebook.com/groups/407494112747727/> or others).
Do you have any recommendations of relevant literature, theoretical and empirical research on these Facebook groups or, more broadly on the topic of sharing genetic tests' results on social media?
Your suggestions will be much appreciated !
Best regards, Serena
--
Serena Ciranna
PhD student, Institut Jean-Nicod, EHESS, Paris
Visiting researcher at EPIDAPO, Institute for Society and Genetics, UCLA _______________________________________________ The Air-L@listserv.aoir.org mailing list is provided by the Association of Internet Researchers http://aoir.org Subscribe, change options or unsubscribe at: http://listserv.aoir.org/listinfo.cgi/air-l-aoir.org
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-- Serena Ciranna PhD student, Institut Jean-Nicod, EHESS, Paris Visiting researcher at EPIDAPO, Institute for Society and Genetics, UCLA